To the pain….

To the pain, means that every moment of everyday I raise a toast to the pain.

There is no one point of pain to focus on, when you identify one sharp pain, a dull throbbing one will be beating the background tempo, the overwhelming presence of hurt with no beginning and no end in sight is a constant and now you only notice the few blissful moments when you realise, it doesn’t hurt, before you take that next move and aaargh!

I realised recently that I have posted much about my symptoms and maybe this is quite depressing, so decided its time to add some positive tips on how to cope.

Pain relief, a contentious issue but my advice is to take it. I remember my first experience of Tramadol so clearly, I felt I had taken a magic potion and was freed from the crucifying agony. I was experiencing severe back pain then on top of the usual and all movement was a vehement torture, I vividly remember the sudden dulling of the pain followed by no pain and knew then that I had suffered enough, I had been brave but now it was time to stop the punishment and accept the medication. This is an opiate and that is scary, but just think of a woman in labour, there are those who opt for no drugs, I was one of those until it started, but who would advise a pregnant woman to go without gas and air at least. The pain is expected and so are the drugs to help manage this.

I am allergic to ibuprofen and so my choices are limited, if you find a pain reliever that helps, take it, carefully and respectfully and with your Doctor’s advice.

People have all kinds of advice for you generally, small suggestions such as taking magnesium or vitamin D, to varying diets, cutting out something and avoiding processed foods to hypno therapy and strange expensive medically dubious courses. There is always a someone to tell you they had it but cured themselves with juice drinks etc. Don’t let it get you down, in fact don’t even listen to it. Saying that now, how do I go on to give you the gems of my own wisdoms, well I am going to, so there. hopefully you will read enough to know that I write only from my wide knowledge and personal experience and have no magic answers to follow.

I will start with this.

it is hard, it will be hard and when you think you can take no more, it will get harder.

Accept this.

When you are crying with agony and confusion just accept, it’s hard, fucking hard!

Smile through the pain when you can, cry when you can’t.

Chrisxx