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Author Archives: livingwithme

New Year!

Well a happy new year to you all! Yes I know its March and so a little late to say, but this is just how long it takes me to get back into an even routine, enough so that I am able to think my thoughts, never mind share them here. The natural world isContinue reading “New Year!”

Posted bylivingwithmeMarch 3, 2021Posted inUncategorizedLeave a comment on New Year!

Background.

I have so much planned for this site and had hoped to have added much more by this point. I realise now that the slow pace is a part of my condition and therefore its something I must accept. So with this in mind I shall condense a background history of my journey through lifeContinue reading “Background.”

Posted bylivingwithmeDecember 21, 2020January 19, 2022Posted inBackgroundLeave a comment on Background.

Twister.

Do you remember the game, Twister? I grew up in the 70’s and 80’s, a time before mobile phones and instant tech, a time when boredom was an accepted part of childhood, when parents simply expected you to entertain yourselves, paying little or no attention. Twister was a stalwart of our generation, try as youContinue reading “Twister.”

Posted bylivingwithmeDecember 20, 2020Posted inSymptomsLeave a comment on Twister.

The In-between.

Well hello there, It has been some time since my last post and thought I should try and add something, so I will explain where I’ve been. I’ve been in the In-between! This is the place to get lost in and is a struggle to get out of, not unlike ‘The Further’ of the insidiousContinue reading “The In-between.”

Posted bylivingwithmeDecember 19, 2020December 19, 2020Posted inSymptomsLeave a comment on The In-between.

Mobile Phone

Part Two I am now using the mobile analogy regularly. It just seems easier as it removes all emotion. I am an outdated phone, my circuits are fried. So here are my helpful categories … Dead This is full shutdown. Out of action, shutdown, Kaputt, bedridden, comatose. Nothing can be done here other than makeContinue reading “Mobile Phone”

Posted bylivingwithmeDecember 2, 2020December 3, 2020Posted inSymptomsLeave a comment on Mobile Phone

Mobile Phone

part one. So I have started to describe my condition in relation to a mobile phone. so many people ask about my illness and too many say, ‘so you get tired all the time’. It is just too difficult to explain, particularly as it can be so hard to remember them all, so I startContinue reading “Mobile Phone”

Posted bylivingwithmeNovember 24, 2020December 3, 2020Posted inSymptomsLeave a comment on Mobile Phone

Type Pace.

So I am back! I write this with a timer running for five minutes. I have no plan of what to write, so lets see what comes out. I am curious to see how much I can type in the time limit. This is my new strategy, true pacing, I shall type for 5 minutesContinue reading “Type Pace.”

Posted bylivingwithmeNovember 11, 2020December 3, 2020Posted inPacingLeave a comment on Type Pace.

Claw Hand.

Proud of myself for finally pressing the launch button, I had forgotten there would be consequences… Yes following only a short time typing yesterday, throughout the night I was awoken by pains searing through my hands and fingers, yes honestly, life is grand! Now I realise why this blog has taken me so long andContinue reading “Claw Hand.”

Posted bylivingwithmeNovember 5, 2020November 9, 2020Posted inSymptomsLeave a comment on Claw Hand.

Leaning Tower of Pizza.

So anyone else know this feeling? You try to stand, but your body seems inexplicably drawn over to one side, you lean out with feet firmly on floor, feeling like, well a leaning tower. I now know that this is bad news, this is me on the way to shut down and the only solutionContinue reading “Leaning Tower of Pizza.”

Posted bylivingwithmeNovember 4, 2020November 9, 2020Posted inSymptomsLeave a comment on Leaning Tower of Pizza.

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