Recently I was travelling by bus, unusually, I had a Cockapoo on my knee and it was a little awkward. After a good while, I heard this sentence from the young woman sitting behind me. ‘Excuse me, you have a leaf in your hair’. I must say it was quite the unexpected conversation, luckily sheContinue reading “Excuse me,you have a leaf in your hair.”
Author Archives: livingwithme
She’s Electric.
I lie in bed seeking sleep, yet my body will not give in. Electricity surges through me, I am alive, I want to shout, like a creation of Frankenstein. Okay, okay, I am already alive, you can stop zapping me now. My muscles and joints pop, an internal body popping motion that travels throughout me.Continue reading “She’s Electric.”
New Year. Old Me.
Well its another new year, the time for optimism and making plans. Thinking of the things we want to change, give up on. New things we want to start. Setting goals to achieve the life we hope for. Its a positive time, we shake off the year before, raise our heads up from the winterContinue reading “New Year. Old Me.”
Waiting for Workers.
Today I am waiting for workers to visit to sort jobs around the house. We are with a housing association and in theory we are well taken care of. There were years in the past when the system worked well, but since Covid, the service has suffered. I have waited three months for this appointmentContinue reading “Waiting for Workers.”
So that was Xmas!
And what have we done? Errrr. Not a lot. It was another mainly miserable, lonely time for me, hard enough to make myself function over the season of cheer but I live with a twenty year old, who suffers with this plague also, so its doubly hard. She promised to be awake this year, IContinue reading “So that was Xmas!”
Hibernation.
Each Autumn, my body starts to shut down, viral symptoms plague me, forcing me to rest, daring me to try to live, full flu symptoms floating over me, If I allow it to take hold it will take me down. Rests calls, drawing me to my bed, the in between world seeping through me. TheContinue reading “Hibernation.”
Watching.
Recently I found myself in the mood for watching films, well not just in the mood but able to actually watch, follow and comprehend. I settled myself onto the sofa, feeling cosy, its not often I just snuggle up in the living room. My life is spent following my condition management routine, being active orContinue reading “Watching.”
The Rack.
I often have painful nights, I want to try to communicate this pain as a way to come to terms with it. Somehow giving symptoms a name helps me to accept them. I lie down in bed, tired and ready for sleep that can not come, I imagine I am tied on to a medievalContinue reading “The Rack.”
Waffle Waffle.
Yes today I am literally waffling about waffles. I love a waffle, weeks ago I determined I would make some. Over a year ago I ordered a waffle iron, craving them and deciding I would make them, it hangs in the kitchen unused. So I looked up the recipe, shopped and bought the ingredients, includingContinue reading “Waffle Waffle.”
Pukey!
Well this is an unpleasant symptom and so if you have a weak stomach maybe don’t read on. I have written about this topic before but feel drawn to say more as lately this is a daily horrible symptom. So yes I feel sick, like whirling nausea constantly, its like being sea sick, my vertigoContinue reading “Pukey!”
Living With ME 