Just a quick one to say what’s going on with me. I’m a mess, a giant slug or sloth or such like, I’m surprised to find its Friday, I’ve been in bed mostly my switch has flicked hibernation has triggered. I’m up today but not ‘at em’ and after this I will be lying downContinue reading “Now, just a day.”
Author Archives: livingwithme
Glass eyes or plastic?
My waffle today is on the topic of eyesight and in particular glasses. I just have to ramble this out as this morning my glasses are driving me mad. Firstly, I got up without putting them on, I went about my morning routine oblivious, quite literally. It was only as I sat down in frontContinue reading “Glass eyes or plastic?”
The Weekend.
Well on Friday morning, I updated you on my flailing condition, so here is just a quick follow up note. I spent the time since then and in fact the whole weekend, out of action, in bed mostly, I achieved nothing. I snuggled up in my nest on Friday and into Saturday, various Netflix showsContinue reading “The Weekend.”
Pause for thought?
I have reached a pause point. After a number of weeks of being organised and on track, meeting my routine expectations, I have hit a lull. My energy is sapped my thoughts have disappeared; thinking is too much of an effort, as is doing. I am declaring rest time before I fall into the quagmire.Continue reading “Pause for thought?”
Hapless Halloween.
Well, it is Halloween today and I just want to moan. After a cold start to Autumn, it is now warmer than it should be, when we want cold dark spooky nights, instead we get sweaty breezy evenings. Clocks were put back and its suddenly dark early, the town’s Xmas lights have been hung inContinue reading “Hapless Halloween.”
Sausage Sizzle
It’s the start of a new year and far from BBQ season, and yet I still think of sausages sizzling. My fingers swell and remind me of the childhood song sausage in a pan, ‘sizzle, sizzle, sizzle sizzle, sausage in a pan.’ They feel fit to burst, the pressure a constant symptom. I watch themContinue reading “Sausage Sizzle”
Phillip Pirrip! (PIP)
Forgive this literary reference, it just comes to my mind when I think of the subject of, yes you guessed it, PIP! Personal, Independence Payment. My only advice on this topic, if you don’t have it, haven’t applied ever, apply for it now, right now, no hesitating! It is not means tested and so itContinue reading “Phillip Pirrip! (PIP)”
There’s no point crying over spilt milk.
Ok, so this title is misleading, my milk isn’t spilt, it’s lost! I arose this morning and happily poured out my bowl of morning muesli, I had missed it yesterday as I had forgotten to buy my milk, leading to an extra shopping trip. With confidence I open the fridge and reach for it onlyContinue reading “There’s no point crying over spilt milk.”
To the pain….
To the pain, means that every moment of everyday I raise a toast to the pain. There is no one point of pain to focus on, when you identify one sharp pain, a dull throbbing one will be beating the background tempo, the overwhelming presence of hurt with no beginning and no end in sightContinue reading “To the pain….”
GET moving!
Yes, it is time I started sharing, treatments and helpful knowledge with you all. Exercise is the most important part of my condition management plan. this may shock some of you, but exercise creates energy and that’s what we lack, so harnessing the power of the right kind of exercise with pacing and care isContinue reading “GET moving!”
Living With ME 