Updates – Living With ME

Fibro News.

Yesterday, Morning Live, showed a piece on Fibro, Research has found that it is not a disease of the brain but of the immune system, affecting the nervous system. Better still, in mice they have been able to cause and cure Fibro. This bodes well for the future. Okay its probably a long way awayContinue reading “Fibro News.”

Where have I been?

It feels like forever since I sat down to this blog, I think it has been a long time, I am definitely out of the habit of writing. Gone is the routine of last year when I produced a blog and a waffle most weeks. Where have I been? I have no idea. No whereContinue reading “Where have I been?”

I can’t talk about it.

I am sitting here in the lovely warm library, thinking of things to write. I have a list of topics with pieces half written in my head and yet I just can’t do it. I reread my last post and cried, quietly. I have lost my positivity, my determination and clarity. I want to cryContinue reading “I can’t talk about it.”

New Year Update

Well, I’m back from outer space! Sort of. I am showered, dressed, made up and out of the house and not in a muddy field with dogs. I am trying! Christmas was, in the end a PJ affair, that was as relaxing as it was depressing. My pain feels through the roof and has madeContinue reading “New Year Update”

Seasonal Update

Its a few days before Xmas and I have been unable to work on this for weeks; luckily I had some saved, was so proud of myself for getting organised and then just like that I am not. I succumbed to ‘flu’ and that took me out but since then its the family responsibility ofContinue reading “Seasonal Update”

Now, just a day.

Just a quick one to say what’s going on with me. I’m a mess, a giant slug or sloth or such like, I’m surprised to find its Friday, I’ve been in bed mostly my switch has flicked hibernation has triggered. I’m up today but not ‘at em’ and after this I will be lying downContinue reading “Now, just a day.”

The Weekend.

Well on Friday morning, I updated you on my flailing condition, so here is just a quick follow up note. I spent the time since then and in fact the whole weekend, out of action, in bed mostly, I achieved nothing. I snuggled up in my nest on Friday and into Saturday, various Netflix showsContinue reading “The Weekend.”

Pause for thought?

I have reached a pause point. After a number of weeks of being organised and on track, meeting my routine expectations, I have hit a lull. My energy is sapped my thoughts have disappeared; thinking is too much of an effort, as is doing. I am declaring rest time before I fall into the quagmire.Continue reading “Pause for thought?”